Finally everything is starting to fall into place. It feels fantastic, yet as it’s all “in progress” I still can’t quite believe it’s happening. All this has been going on for so long.

Firstly all the hospital things are finally drawing to a close. There are still a few more tests to be done, but they’re not terribly likely. I also now have some notes in Bristol and some notes here, they’re in a bit of a mess and there are loads of them – so the genetisist is going to check that everything that was meant to be done HAS actually been done! Whilst they didn’t find anything almost everyone agrees that it is very unlikely to be ME, and if it is it’s a form so a-typical that using that particular “label” is useless anyway as it doesn’t describe my particular symtoms at all. Therefore, from this point onwards, I am moving on and whenever anyone asks what’s wrong I shall tell them I have an undiagnosed condition that causes severe muscle weakness. Voila, end of chapter, semi-happy froggy and finally able to move on. Well, almost. Just got to let them tie up the loose ends.

Secondly I’ve been waiting for a stair climber on loan from social services so I can clear out my room, finally got a phone call yesterday to say it’s coming on the 24th August 🙂 Still 3 weeks away, but it’s so nice to have a date after waiting so long. It’s been back for well over a month, but evidently it takes this long to service it 🙄 I’m going to box up everything I want to keep, then sort the rest into car boot/charity shop/bin. Stuff for the charity shop and bin will go instantly, then hopefully I’ll get round to having a car boot in October. Bit weird to be going upstairs again after so many years, my room is more or less frozen in time from when I was about twelve/thirteen.

Thirdly the plans for the extension are really coming together now. It’s been submitted to building regs (hopefully there won’t be any problems) and the architect reckons the builders will probably start approximately April next year. He came on Thursday afternoon and we sorted out the finer details – door type, window type, light switches, plug sockets – and somehow even though we didn’t seem to do much he didn’t leave until gone 5pm, he was here about 2 hours. I’ve put so many sockets in, but I have a lot of electrical appliances 😆
April may seem like a long time away, but it’s taken so long to get to this point it doesn’t really seem too bad. Eight months is nothing compared to the time spent so far! Now I get to go kitchen and bathroom shopping (well, browsing).

Fourthly I finally got an assessment interview for something very important I’ve been waiting a very long time for. I don’t want to go into details yet, but it means more to me than anything, I’m so excited. No date yet, just a letter confirming that someone will contact me in the near future to arrange a time and date.

Fifthly Suzie went to America and very kindly helped me fuel my Neopets obsession by letting me get some Neopets TCGs shipped to her which she then brought back and is going to post to me next week 🙂 Saved me money even having to pay an extra shipping charge because of customs duty. I’ve been waiting so long for them it’s very exciting! I’m also expecting some more from Australia (which, knowing my luck, I’ll probably get clobbered with about £50 of customs charges) which I’ve been waiting 6 weeks for (surface mail) and I’m getting impatient 😉

So that’s my news! It feels good to sit down and write, I do believe I’ve missed it! I’ll have to start trying more often again 🙂