I feel like writing but there’s not really much I want to write about, so I shall start by wishing you all an extremely belated christmas!

I find it very hard to put my feelings into words, an awful lot has happened over the last six months but I really haven’t wanted to write it down – it’s been such a rollercoaster. I’ve not really done anything that I was doing before, just can’t settle to anything.

The muscle biopsy results came back normal, though they didn’t check the mitochondria. I never really thought it would come back abnormal, though I sort of hoped. This rules out all the really nasty stuff (progressive muscular dystrophies..etc) but I haven’t been deteriorating (and I’ve had my CPK levels checked in the past and they’ve been normal. CPK is an enzyme found in the brain, heart and skeletal muscle, if the muscle tissue is damaged it leaks into the bloodstream) so I never thought that was a possibility. We have a few more tests left to do and if they come back normal (which everyone seems to think they will now) I don’t really know what to think.

I’m so very tired, physically and emotionally drained. I’ve not been sleeping well and just bah!

I had a decent Christmas considering, for the first year ever I just wasn’t in the mood which shows how bad things must be 😉 I owe thank yous and things to a few people which I will get to soon, I promise. For now, thank you everyone!

I have x-rays (eventually) on Wednesday. It’s been such a saga to get these done, I won’t explain suffice to say that this appt was originally scheduled for October and has been cancelled and rescheduled multiple times since then because they kept being incompetent!

If I feel like it I think I’d quite like to have the end of term down in writing – I went to Selworthy’s carol service on the 14th, the reception christmas party at my old primary school on the 16th and then the last afternoon of term in reception on the 21st.